Is It Dyslexia? Does It Matter What I Call It?

 NO! It doesn't matter what you call it! But also, it totally does.

First, it's #DyselxiaAwarenessMonth so I'm not sure if this post is well-timed or ill-timed, but here it goes!

It turns out that nearly ALL kids can learn to read if you provide them with appropriate, evidence-based, systematic, cumulative instruction. It should include instruction in all the big ideas of beginning reading - phonemic awareness, phonics, fluency, vocabulary, and comprehension. 

For some kids, this process will take little time. They will get it after just a little practice. But MOST kids - not just kids with dyslexia or a reading disability - need systematic instruction in the 5 big ideas. 

Sidebar: I love this video from my friend Jess Surles. She can tell you better than I can, what effective instruction looks like: 

 All kids are going to learn to read at a different rate. Like I said above, some will pick it up like it's nothing and that's great, but not everyone can do that (in fact, MOST people can't). But what we DO know is that systematic, cumulative, instruction (that hopefully has an evidence base) is the best way (that we know of right now) to teach MOST kids to read (like, virtually anyone). Sorry for all the parenthetical phrases there, but I wanted to make sure that I was qualifying things - because it turns out that science is ever evolving and we should change practice as new evidence comes to light.

So, call it what you want - dyslexia, a specific learning disability in reading, struggling reader - if we were providing the appropriate instruction to all kids, the labels wouldn't matter so much. 

I also think that some people find the word dyslexia to be a little scary. It's scary to think that your child has a disability and maybe it's easier to just use the term struggling reader.

So, all that being said, why do I believe that it's also totally important to use the word dyslexia?

Because when I told my son that the reason he couldn't read was that he had something called dyslexia which just meant that his brain was wired differently and it made connecting sounds to letters and words in print difficult, he was so relieved. He was relieved because he had spent years feeling like he was stupid; like he was incapable of doing this thing that all these other kids could do. Adults made him feel like he was supposed to be able to do this thing and instead of helping, they paired him with other students who couldn't read and told them to "read together" which of course, they couldn't do. 

So suddenly he had confidence in himself. He felt like he could say, I have dyslexia. It's a brain difference that makes it hard for me to read. And you know, for the most part, people just accept that. 

So, do we need to call it dyslexia? We shouldn't have to. We shouldn't have to pay a neuropsychologist to give us a diagnosis of dyslexia to get help for our kids. It's cost prohibitive for most people. And we shouldn't have to be in a situation where our kids have to have a word to apply to themselves because they haven't been taught to read. But...here we are. So, the answer is YES. It is so important that we #saydyslexia that we screen for dyslexia and that we provide intensive evidence-based instruction for kids who have dyslexia (but also any other reading struggle).